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The name Josilyn means "My Joy" and
little did we know how fitting that would be for our 4th child,
Josie.
Josie is a delightful, smiling, bright and polite little 4½
year old, blond hair, blue eyed girl. She is engaging, affectionate,
cooperative, smart, able to follow routines and directions, loves
preschool and enjoys books, movies, eating noodles and exhibits a
desire to know the name of every person she meets. Josie is a
naturally thankful and cheerful kid, loves bible stories, sings
several songs and is talking as well.
Josie has a life verse that is Psalm 138:8
"The Lord will work out
His plans for my life!"
I'm glad that I met Josie before I read the text books about Down
Syndrome, everyday I let Josie tell me about what Down Syndrome is
really like. Children with Down Syndrome are more similar than they
are more different from other children! We must also remember that
Josie has our genetic makeup as well and so many of her traits are
just like those of her family members. Down Syndrome is just a small
part of who Josie is. Josie is a person first.
It is good to remember that God didn't make a mistake, Josie has
purpose in her life and value as a person. She is a messenger from
God, sent to us to see if we are teachable, educable, trainable and
if our compassion outweighs our IQ. We have so many lessons to
learn, children will do that to you! The best thing anyone ever said
to me when Josie was first diagnosed was our neighbor Laurie who
said "Oh bless her little heart, she'll be such a fun girl!"
I have never felt "special" or that "if anyone could handle this,
you could" as a parent but I have always felt especially chosen for
this path. When I feel unable, I have a very big God who is able. He
equips us for the road ahead, one step at a time.
It is our intention to give Josie every opportunity and every
advantage to enable her to reach her full potential in life. Our
goal for Josie is the same as that for our other 3 children: To live
a meaningful life, pleasing to God. Josie is well on her way!
Josie has indeed been "Our Joy" and God's gift to us and to our
other children. Because of Him we are all learning to be a little
different. At first it was grievous to think that we would have to
travel a different path with our 4th child. Our concerns were for
her but we also knew that our lives were being affected for a
lifetime. We are so grateful and feel privileged to raise a special
child like Josie. She is a very fascinating person. She has been
very healthy and has been learning and growing steadily for which we
are very thankful. However we have had much to learn, about Down
Syndrome, about Josie and about ourselves.
We are indeed on a new
path and not one that many others can understand. For those who wish
to get close to Josie, she is like a bright light in their lives.
But that is sometimes the unknown secret of raising a child like
Josie. There's work involved, and letting go of the way "I" wanted
things and looking at things from a new
perspective. I am always
feeling stretched into new boundaries! Getting educated has shed
tremendous light, being in prayer and searching the Word has led us
in a dependence upon the Lord instead of leaning on our own
abilities. In her development, it will be Josie's love for the Lord
that will steer her ability or disability. The same is true for any
person... Josie will be more similar than she is more different to
the other kids.
But Josie will outshine any of us by her love.
"For You created my
inmost being; You knit me together in my mother's womb. I praise you
because I am fearfully and wonderfully made; Your works are
wonderful, I know that full well. My frame was not hidden from You
when I was made in the secret place. When I was woven together in
the depths of the earth, Your eyes saw my unformed body. All the
days ordained for me were written in Your book before one of them
came to be."
Psalm 139:13-16
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From Josie's
Perspective... |
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I wake up every morning with a smile and "hello"! I hug without
reservation! I eat cheerios and really, really love noodles. My
favorite things are preschool, watching movies, Bible stories and
Woody & Buzz (they do really fun stuff!). I cheer and clap and shout
"hurray" for all the words that I say and for things that make me so
proud, like going on the big potty and walking down the steps by
myself. I feel real BIG.
I am running now. People say that I'm very
SMART! I think they are so much fun! My sister, Lauren, shares a
room with me and she reads me bible stories at night when we're
supposed to be quiet. I use words to tell my brother, Nathan, what
to do and he does it! Like getting us pickles & potato chips to eat.
He knows the most fun stuff to eat. My sister, Heidi, takes care of
me, I tell her "1 more movie" and she listens to what I want.
When
it's time for Sunday School, I just GO! My parents don't need my
help in getting into the classroom, I already know where everything
is. My dad is the bible story teacher. I think that I will probably
run that classroom when he retires from it, I already own it. When
the teacher prays too long I just shut her down by saying "Amen"
real loud. It usually works for me.
When kids get hurt I'm right
there to ask "you ok?" They always make it through with that. I'll
show you smiles and belly laughs and kindnesses that you've only
dreamed of... I've told you a lot of things about myself because my
world is so unlimited! I'm so excited to walk the Buddy Walk, I
might just RUN! I can't wait to share a bit of sunshine with you.
See you there! |
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